an mri and one step closer

Posted on | February 20, 2013 | 5 Comments

UPDATE: Wow, it’s been a while since I wrote that first post.. Since then, I still haven’t gotten my MRI.. My insurance won’t approve it. They feel that it’s not needed because before I moved here to Stockton I had an x-ray taken of my sinus cavity to see if I had blockage in there (infection) and it was all clear, they feel that was enough to rule out the MRI.. Even though an MRI would show Nerve damage or other reasons that may be causing the chronic migraines. Go figure.. You would think that an Insurance company would want to do what it takes to STOP something that is causing pain so that in the long run they wouldn’t be Paying out medical costs. Where I stand right now they are having to continue paying for medication and they are going to have to up the stakes to pay for me being Disabled / or Disability insurance.. I want them to help me get FIXED so I won’t be on disability and won’t need them to pay for all this crap. WHAT Is WRONG WITH THIS COUNTRY? I don’t get it…. They are Keeping me ON their Payroll instead of getting me OFF the payroll… It makes NO SENSE…

I’m on three meds right now, they keep my headaches down to a minimum. I can function at least 3 days a week which was better than what i had before. I have 2 great days a week is fantastic compared to my 3 days a month good days before I got on meds.. SO I would say my quality of life has increased tremendously. I would love to see at least 4 or 5 days a week that are good though… The rest of the time I am in daze or so much pain that I have to lay in bed from the pain.. and during my “cycle” I am down for the count (at least 10 days) NOT good at all.. I’m on Topimax but it doesn’t seem to do much for me like it does for others.. We have a couple other options to look into yet so the fight is not over yet before we feel that we have exhausted all of our options. I have not given up on this fight by any means.. And as you can tell, I am blogging much more than I was before so my life is a little better and I am loving life much more. My daughter says I am a new person. That is all I can ask for, but HUMAN I am, so I do ask for more as all I want is to be Normal… But what is NORMAL??

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ORIG: 19/13/2011: Well, this adventure in finding out why i have chronic headaches. It’s been 6 months in this long journey, I know I am no where near 1/2 way there…. However, I will admit that each time I go to a Dr, try a new medication, or have another test ran. I am one step closer to finding out if they can help me, what is the cause if they know, and how can I deal with this better…

I have to say that I have improved quite a bit since I started down this road. Dont get me wrong the pain is unbearable most of the time. but I have noticed some changes. I have been on several different types of medicine, some work on the lesser headaches. Still not relief on the Migraines. and Still no help with the arthritis… Like I said. It’s a slow process.

I should get a call tomorrow letting me know when My MRI is… I hope I can take ear plugs. I have a feeling that the machine is VERY loud and will cause me to get a migraine.

anyhow, thanks for listening.

A Mom’s Rantings

Rachel McGuire

Category: life, RanDoMneSs

Comments

5 Responses to “an mri and one step closer”

Mary
September 14th, 2011 @ 7:07 am
1
Hi Rachel,
My heart goes out to you. You sound like you are in so much pain.
I had a similar experience and it turned out to be, of all things, food allergies/sensitivities. I know it doesn’t seem to make sense! In my case, the joint pain/inflammation was a wheat/gluten sensitivity and the migraines that wouldn’t go away were from eating corn products. I went to an allergist and she told me that most doctors never think of food intolerance and that in the U.S. the average time from onset of symptoms to diagnosis of a food allergy/sensitivity is 12 years!
BTW, as soon as I stopped eating anything with corn in it, my 6 week long unbearable migraine eased up the next day and I felt better and better each day as the corn cleared out of my system. By day 5 I had no headache at all.
I avoid wheat/gluten but if I ever have it, I notice a slight pain in my feet and knees the next day which gets much worse if I keep eating bread, etc…
I don’t know if this will help you but I hope it does. I will keep you in my thoughts!
All the best,
Mary
Kelly
September 14th, 2011 @ 9:03 am
2
I used to have the same problem. I had tension headaches along with migraines. I think it might have been heat. We moved somewhere cooler and I haven’t had them since. Good luck figuring out what works for you!
amomsrantings
September 15th, 2011 @ 8:17 am
3
Hi there Kelly,
Thank you so much for responding. That is the headaches I get.. I get massive tension headaches nearly every day and migraines 3 or more times a week. I do know that in the heat (90′s and above) my headaches are much worse. No chance of me getting to move to a cooler state. I’m staying right here to be with my family.. Thanks for telling me your story too.. I appreciate knowing I’m not alone, but I hate to hear that someone else is suffering. Bless you…
amomsrantings
September 15th, 2011 @ 8:23 am
4
Hello Mary,
Thank you too for replying to my post. I am so sorry to hear that you oohave suffered. It has been this way for me since I was a young child, so it’s hard telling what it could be. Between the scoliosis, the car wrecks and yes, I eat all those things you mentioned, it could be a many thing causing this. My next thought was indeed to mention to my dr about going to see an allergist.. I have done a little diet control on my own. but it was conducted with my chiropractor.. he had me go a month without all foods except for salad (with no dressing, no toppings and only whole fiberous fresh veggies).. it was definately a difficult experience as I am a junk food junkie…. I gave up all sugars, all mold’s (mushrooms, cheeses) all dairy all everythin, then slowly introduced them one by one back into my diet. I know I have sensitivities to sugar and breads (gluten) I guess I may have to Look at it more seriously and make some REAL changes… Thank you…
Terri
September 18th, 2011 @ 1:22 pm
5
I sure do hope they find something to help relieve your migraines. I have only had a couple in my lifetime and they were pretty horrible. I can’t imagine how terrible it would be to have them often.